ADHD in the NEWS: We need your help to make our government act now and tackle the failing in ADHD service provisions in the NHS.
ADHD patient groups, service providers, clinical and academic healthcare providers and educational specialists have joined together with the ADHD Foundation to lobby government to make the changes we need to ADHD care in the UK.
In a Times Publication on 15th April and a Good Morning Britain interview with Rory Bremner on 17th April, which can be viewed here, the ADHD Foundation are launching a campaign to lobby government. To get our voices heard we are asking our members to print and send The Consensus Statement, available here to download, summarising the asks, to their local MP. Please accompany with a polite letter and ask them to respond. Please inform us of any responses by emailing email@example.com.
For further details the press statement can be found here.
Talk dates 2019 – you can find information on our talks planned in 2019 below and by visiting – ADHD talks dates – Tues & Thurs 2019.
If you were unable to attend the talk on Thursday 7th February by Fintan O’Regan “No two children are the same……and neither are their parents – Family dynamics and ADHD” you can find a copy the slides here.
Tuesday Daytime Seminar April 23rd 2019 11:00am – 12:00pm
Venue – Heatham House, Twickenham, TW1
Dr Nicola Reynold Principle Clinical Psychologist/Clinical Lead for Integrated Children’s Services (Oxleas NHS Foundation Trust) Presents: “Digital Interventions for ADHD and general questions”
Followed by: Tuesday Networking Coffee Morning 12:00pm – 1:00pm
A chance for parents/carers and other attendees to share ideas and experience in an informal setting.
Venue: Heatham House, Twickenham, TW1 1BH
Please note there is no parking available at Heatham House itself but there is free parking after 6pm at the nearest car park which is on Aragon Road (behind Waitrose). Heatham House is also a few minutes’ walk from Twickenham station and is on bus route 281 or you can get the 267 bus to Twickenham Station.
Save the Date – Thursday 9 May 2019
ADHD Richmond and Kingston AGM. This will be held at 8:15pm on Thursday 9 May 2019. It will follow after the Thursday seminar starting at 7pm where Dr Kate Langley is talking about ADHD and its overlap with other neurological development disorders.
Tuesday afternoon – Me too & Co osteopathy clinic. The CrossWay Centre, 306 Richmond Road, East Twickenham, TW1 2PD.
The Me too & Co osteopathy clinic is now happening every Tuesday afternoon. This is a wonderful facility as osteopathy can benefit a variety of areas – anxiety, stress, sensory overload, digestion and gut issues, etc. Places are usually available 2-3 weeks ahead. If your child is coming for the first time you will need to book a double appointment. To find out more and book a place for your child, link here: https://www.metooandco.org.uk/activity/55/osteopathy-clinic/
Mid-February 2019 – 1:1 sessions for parents of children in the Kingston borough
From mid-February there will be some free 1:1 sessions for those Kingston borough parents who have already attended a Post-diagnosis session. These 1:1 sessions are funded by AfC and will last one hour. They offer information and support to parents of children and young people with ADHD who may be struggling to cope with symptoms, behaviour and school issues. Additionally, maybe your teen would like to talk to someone about ADHD. If you are interested then please contact Val Ivens: firstname.lastname@example.org. Please note that the above service already exists for Richmond borough parents subject to the current funding remaining available.”
New Parent Panel in Richmond
Contact, the charity for families with disabled children is leading the process for establishing a new Parent and Carer Forum in Richmond. As this process may take some time, the Council and Achieving for Children (AfC) wish to establish an interim parent panel. They are calling parents/carers of children and young people with ADHD to join a Richmond Borough Council Parent Panel looking at the needs of children and young people with special educational needs and disabilities in the Borough.
ADHD Richmond and Kingston has been approached to make parents aware of the Council’s new Parent Panel and that they are particularly interested in hearing from the parents and carers of children and young people with the following needs:
- ADHD and ADD
- Specific learning difficulties
- Moderate learning difficulties
- Hearing impairment
- Social, emotional and mental health conditions
If parents are interested in joining the Panel, they can register their interest at:
A letter explaining more details of plans for the panel is available from us by emailing: email@example.com
We are very keen to encourage parents of children and young people with ADHD to come forward and participate on the Panel as this seems to be a group which is under represented.
We have been approached by researchers on two studies for families to participate. These are as follows:
1. Research on Sleep:
We have been contacted by the Baby Lab section of the Neuropsychology Lab at University College Dublin which is running a project looking at the relation between factors such as sleep, family, and sensory processing on attention development in young children. They are particularly interested in recruiting children under 6 whose parents and/or older sibling has a diagnosis of ADHD.
The research project involves parents completing an online questionnaire which takes about 20 minutes. The questionnaire asks questions about child behaviour, sleep habits, sensory processing, and the family as a whole. A link to the survey can be found here
2. Research on sugar and its taste
Ongoing – ADHD Research Trials King’s College London are inviting boys with ADHD aged between 10 and 18 years old to participate in clinical trials. The trials are summarised below but more detail can be found on their facebook page and a BBC feature on trials 1 & 2.
Trial 1 – fMRI Neurofeedback as a novel neurotherapy for children with ADHD
Boys (aged between 10 and 18-years) with ADHD will be trained over several sessions to enhance their brain activity in a magnetic resonance imaging (MRI) scanner by playing on a computer game that is connected to their brain activity, a process known neurofeedback. Our pilot study showed that Neurofeedback training improved attention and self-control in ADHD boys, and this improvement was still observed and even better 11 months after the study. In this study, we plan to replicate our previous findings but on a much larger sample. The ultimate goal is to further the development of new, side-effect free, treatments for ADHD that is not using medication but trains the ability of the patients to self-regulate their brain activity. Points of contact: Marion Ciraud, PhD firstname.lastname@example.org, Tel: 0207 848 5370
Trial 2 — A novel brain-based therapy for ADHD children using transcranial direct current stimulation (tDCS) combined with cognitive training.
Boys (aged between 10 and 18-years) with ADHD will be trained overall several sessions to improve their attention and self-control skills with brain training computer games whilst receiving brain stimulation using transcranial direct current stimulation (tDCS). tDCS involves applying of weak small electrical currents to a frontal part of your brain thereby boosting the learning effect in the computer game by giving your brain an extra “push”. This technique has been around for more than 20 years, is completely safe, has no side effects and is used in many other patient groups. This study will help to develop a new treatment for ADHD that is not reliant on pharmacological medication but on the patients’ own training of their attention and self-control skills with the extra help of some brain stimulation. Points of contact: Samuel Westwood, PhD email@example.com. Tel: 02078 485078
Trial 3 – Experimental fMRI study on the comparison of the brain function effects of a single dose of guanfacine and lisdexamfetamine relative to placebo in children and adolescents with ADHD.
Boys (aged between 10 and 18-years) with ADHD are invited to participate in a study testing the brain effects of two recently licensed ADHD medications – lisdexamfetamine and guanfacine. Both of these drugs can improve ADHD behaviours, but we do not know what they do to the function of the brain. In this study we use functional Magnetic Resonance Imaging (fMRI) to record brain activity while the boys do simple games that involve concentrating, stopping or changing what they are doing. The study involves a screening appointment and three fMRI visits. This study is the first to test the effects of these new drugs on the brain activity of ADHD adolescents and the findings will help us understand how these new drugs work. Boys must not be taking any ADHD medication.
Relaxed Performance: The Curious Incident Of The Dog In The Night-time
Saturday 6th April – 2.30pm, Price per ticket (adult and children): £30
The Piccadilly Theatre is hosting a relaxed performance of the National Theatre’s multi-award-winning production of The Curious Incident Of The Dog In The Night-Time, coinciding with World Autism Awareness Week.
Suitable for ages: 11+
How to book: Online or call 0800 912 6971 (ATG Access line)
Venue address: Piccadilly Theatre, 16 Denman St, Soho, London, W1D 7DY
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All the best from your ADHD Richmond & Kingston Steering Committee